The results from our daughter's tests are back. She does not have cancer. So, that is the good news.
But, and there is always a "but'.... She has a rare blood disorder called ITP or idiopatic thrombocytopenic purpura. Her platelet count is very low. Normal platelet count is between 150K - 400K. Her's is 19K and will most likely not go above 50K. For some reason, her immune system has decided that her platelets are a foreign invader and attacking them. The oncologist wants to monitor her but there is no treatment. If her count goes below 10K, then they'd tranfuse platelets. Meanwhile, the oncologist advised her against "sky diving and knife throwing". :-) She needs to get a medical alert bracelet because she could bleed out rapidly if injured since her clotting ability is now limited. What is amazing to me that with all the doctor visits, blood tests, trips to the ER, and hospitalizations, no one seems to have a record of her blood type (needed for the medical alert bracelet).
So, along with Crohn's, she now is now fighting this. Fun stuff.....
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