Friday, July 13, 2012

Another Scare

We had another scare with our daughter this week.   Thought she might end up in the ER/hospital night before last.  Her ulcerative colitis has been flaring since the first of July but she began running a high temp (~ 102 degrees), and dropped a couple of pounds.   She's also beginning to have joint pain in her hands, wrists, and elbows, which is not good and yet another sign of the progression of her disease.  She went to the doctor yesterday where they drew more blood and looked her over.   She's back on 40 mg. of prednisone daily again - Boo Hiss!   Usual course is to take that dosage for a few weeks or even a couple of months to get the flare under control, then begin to taper off.   Taper off is code for "I'll be on this medication for at least the next six months".    The good news is that it really helps.  The bad - she hates taking it since it makes her feel like a psychotic bitch about to crawl out of her skin.  I mean, she's on 'roids, baby!   Then there's the lovely side effect called "moon face".   Oh, and acne,  insomnia, sweating, shakes, etc.   Sweet stuff.  

And you thought she only pooped blood 15 times a day - silly wabbit!

Because of her ITP, she bruised just removing the tape that was holding the cotton ball in place from the blood draw.    Haven't seen it this morning, but no doubt it's gotten more interesting overnight.   She's a trooper!!


Stay tuned!


No comments:

Post a Comment